1) Waarom deze pagina?

D eze site is voortgekomen uit de ervaringen van ons drieën. Antoon (zie medisch dossier Antoon), Shifra en haar ouders (zie medisch dossier Shifra) en Kees (Zie medisch dossier Kees). Maar we zijn ervan overtuigd dat er vele andere mensen zijn met soortgelijke verhalen en ervaringen. De een wat spectaculairder dan de ander, maar we denken dat juist de verhalen van andere mensen een goede steun kunnen betekenen voor ieder die op zoek is naar antwoorden voor zijn/haar eigen situatie. Nu weten we ook dat er veel verhalen altijd de ronde doen (zie ook alternatieve behandelingen ) over spectaculaire genezingen. Van het licht hebben gezien tot het drinken van een speciaal soort thee enz.
En dat kan. Waarom niet. Toch zouden we graag alleen maar verhalen willen publiceren die gestaafd kunnen worden met bloedonderzoeken, scans, tumormarkers, foto's voor en na de behandeling enz. Dus in feite met bewijzen.

Op deze pagina willen we dus verhalen plaatsen na overleg en contact met de inzender. Zodat u zelf uw verhaal kunt vertellen, maar dat wij in ieder geval weten waar het verhaal op is gebaseerd. U kunt daarvoor contact opnemen met redactie@kanker-actueel.nl en dit richten aan Kees. We hopen dat we in navolging van de Dusansite (zie Internetlinks ) een Nederlandse variant kunnen maken.

Op deze pagina het verhaal van Ronald, een man die eind 1999 begin 2000 geconfronteerd werd met een inoperabele en ongeneeslijke (althans volgen de oncologen) alvleesklierkanker. Op de conferentie van ODE d.d. 6 april 2002 geeft dokter R. Trossèl van het PMC een analyse met Ronald erbij van wat Ronald afgelopen twee jaar allemaal heeft gedaan en meegemaakt, nadat hij doodziek en terminaal (althans volgens zijn behandelend oncoloog) bij Dr. R. Trossèl van het PMC aanklopte. Dr Robert Trossèl is de oprichter van het Preventief Medisch Centrum in Rotterdam. (zie nuttige adressen) Voor hem is het onbegrijpelijk dat artsen beweren dat de patiënt geen andere keuze heeft dan chemotherapie, bestraling of opereren. Trossèls's probleem is hooguit dat er zoveel verschillende opties zijn. 

Een indrukwekkende lezing moet ik zeggen en  ik plaats hier dan ook dit verhaal. Het is weliswaar in het Engels maar hopelijk plaatsen we dit vertaald en wel over een paar weken ook in het Nederlands. Eventuele vragen en op- en aanmerkingen over de informatie op deze pagina kunt u mailen naar ons. Vragen en opmerkingen zal ik doorsturen naar Trossèl of Ronald. Op alles blijft wel onze disclaimer van kracht en deze pagina zien we als een welkome aanvulling op wat wij verder aan informatie hebben. Waarvoor onze dank aan Ronald en dokter Trossèl en ODE. 

Min of meer vergelijkbare verhalen van mensen met alvleesklierkanker kunt u lezen op pagina uw verhaal, Case M. met darm en alvleesklierkanker no. 4, Ook op pagina andere alternatieven informatie over Dr. Gonzalez die een succesvolle studie deed bij alvleesklierkanker met pancreasenzymen. Als u wilt hebben we ook een ander verhaal van een mevrouw die volledig genezen is met hulp van dieet en suppletie van een inoperabele en ongeneeslijke alvleesklierkanker. Stuurt u maar een mail en ik stuur u zowel wetenschappelijk rapport als het verhaal van mw. X. 

2) Het verhaal van Ronald hoe hij zijn gemetasteerde alvleesklierkanker probeert te bedwingen en wellicht met succes

Dr. R. Trossèl is the founder of the PMC a private clinic for complementary treatments of cancer. Dr. Robert Trossèl wrote and spoke this case history at the meeting organised by ODE and SNFK at the 6th of april 2002 in Rotterdam.

CASE HISTORY OF A YOUNG MAN WITH METASTASIZED PANCREATIC HEAD CANCER

Initial complaint :
Mr. Roland D., is a 39 years old electrical engineer. After 6 months of vague stomach complaints and occasional diarrhoea, he started loosing weight and appetite for all foods and was feeling extremely tired in November 1999.

Past medical history.
The past medical history was almost blanc: moderate overweight and congenital poor vision of his left eye.
TRACT history: mild hypertension,no cardiac complaints. No previous history of tonsilitis, COPD, diabetes or infection diseases. Normal childhood diseases and vaccinations.

Course and initial treatment.
Roland had lost 20 kg of weight, he was so tired he had to interrupt his fulltine job as a telecom engineer and was referred to an internist physician. An ultrasound abdominal examination was made on February 22, 2000, which indicated suspective spots in the liver and ascites fluid.
After referral to the surgeon, a laparotomy was performed which revealed an extensive pancreatic tumor with liver metastases.: Diagnostic laparotomy because of inoperable pancreatic carcinoid with extensive retroperitoneal growth and spreading.
After removing a small part of the tumor around the duodenum and at least restoring some passage of food from the stomach to the small intestines, no other surgical intervention was performed because of the poor prognosis of these kind of tumours no matter what one does. A technically inoperable cancer with very poor response to chemotherapy or radiation. So poor that it is not even offered in these cases, because it usually only makes the patient very sick without prolonging life expectancy. Roland was told that he should still try to enjoy life as long as he could, which was estimated at a couple of months or weeks!
For pathology results of the surgically removed parts of tumour mass we can bring you if interested in contact with Trosel. 

At this point a relative of him who was a medical doctor, referred him to the Preventive Medical Center Rotterdam, where I first saw him on March 6, 2000. Adress PMC at nuttige adressen)
During this consultation we both agreed no time should be wasted. We had quite a long discussion about mortality and the reality of dying within a very short time frame. This is traditionally known as a fast growing, agressive, silent killer kind of cancer.
On physical examination he still had his laparotomy stitches in from the surgery the week before, an estimated 5-6 Liters of ascites fluid and a clearly palpable solid tumor mass in pancreatic area of the upper abdomen. To be honest, at that moment I also believed his chances were very slim.
It was 10 days past surgery (Feb. 22 2000). He was still very sick, nauseated and vomiting, he could not hold down any foods, supplements or any oral medication. He had lost 20 kg by now. We could only give him intravenous vitamins and minerals in order to improve his nutritional status. Because he could not tolerate any other nontoxic treatment modalities, I recommended him to go see mr Essaïdi, a medical engineer andatomic scientist in Eindhoven in order to start a course of "Aqua Tilis Therapy". (Take a look at 'andere alternatieven no. 7'  for information about Essaidi and adress etc.) This is a new approach to cancer treatments by means of a magnetic field, similar to the MRI magnetic field in a therefore specially designed treatment cabine. A specific electromagnetic frequency is applied in this cabine in order to resonate with the molecular elements in the tumor tissue, therefore supposely destroying the cancer cells only. The patients stays in this steamcabine for about an hour. One showers before,in between and after the two 15 minute actual treatment sessions. At the same time one receives an antioxidant treatment by attracting negative charged electrons and freeradicals from the body to the positive charged Oxygen and Hydrogen particles in the steam environment of the cabines.

Roland started this treatment twice a week. His response to it was quite spectacular. His ascites disappeared in two weeks as well as his pain in the pancreatic area. This initial therapy was the only treatment he could tolerate in the first 3 weeks anyway.
To support R.D.'s wound healing and local resistance we gave him intravenous vitamin C 25 grams and B6 and B12 injections every other day.
Furthermore he was put on a diet with strict avoidance of sugar, alcohol and smoking
He regained his appetite and bowel tolerance to foods and medicine, so he could slowly start using multivitamins and nontoxic tumor therapy orally (anti-oxydants, immunomoldulators, herbals and food concentrates).
After 1 month he could tolerate the following medication:
Non-toxic antitumor drugs taken daily:
Neurolin phytotherapy, 3x10cc
DHEA 200 mg, 2x1capsule
KSM-Itake/Optam/Sulindac 300/30/3mg, 3x3
Wobenzyme, 3x3
Melatonin 25mg, 1x1 an
Glutathione 500mg, 3x2
Selenium methionine 200mcg, 2x2 
Megagenistine 250mg, 3x4
Quercitin/venoruton 200/50mg, 3x4
Naringin Zinc 200/100mg, 3x2 
Vitamin and mineral supplementation:
Beta carotene
Vitamin B2, B3, B5
Calcium ascorbate
Folic acid
Carnitine
Magnesium

The above treatmentdosages were guided and monitored by screening of whole bloodlevels and hair analysis on vitamins and mineral elements.
He recovered remarkable. In June 2000 he still had occasional diarrhoea, but no ascites fluid anymore, no abdominal pain, no other complaints what so ever. A reduced small tumor mass was still present, but not interfering with any bowel functions. He had gained 15 kg weight and had gone back to work at 50% ability with no other evidence of disease.
CT scan contrasts over the last year showed disapearing of the metastases and stable presence of the remaining pancreatic tumor without growing larger. It is now two years after initial diagnosis and terminal prognosis.
He continues the Aquatilis therapy at monthly maintenance intervals and the non-toxic tumor therapy supplements as described, he feels good and enjoys his life twice as much as before.


UPDATE LATEST DEVELOPMENTS
As we speak now, 25 march 2002, Roland is now fighting another batle with his insurance company in order to get the high dosages and therefore quite costly non toxic tumor therapy medications reimbursed. After two years of paying without many questions asked, they suddenly had formed a different opinion on these matters and decided not to pay his treatments anymore . Roland has asked the Dutch "Nationaal Fonds tegen Kanker" to help him fighting this legal battle with his insurance company. Because he was feeling so well and the costs of his non toxic medications alltogether was well over 1000 Euros he felt he could deminish his maintenance dosage by 50%. Unfortunately this has led to recurrence activity of his tumor since january this year. 
This is the real core of the discussion today. Should an economic desicion of an insurar have so much impact on a man´s health, his life and his family´s wellbeing. And do we believe these things are worth fighting for on a much broader scale in our society. The individual right to choose one´s own healthcare providers and methods of treatment is a fundamental right of human beings (Geneva convention, mrs Roosevelt). Luckily enough, this is not (yet)disputed in our freedom loving country.
However, economic sanctions on these choices and desicions made by insurars, government regulating commissions, locally as well as national and in European international regulations are becoming a more and more life threatening situation for the freedom of choice that we think we have. 
This legal freedom of choice is an illusion if not supported by an economic freedom. Availability and affordability should go hand in hand, especially if a patient and his doctor make a rational choice of all the options offered looking for the safest,soundest and lowest cost solution.